Tuesday, February 19, 2013

Valentine's Day

Happy late Valentine's. We didn't get to celebrate, we were in the hospital with Casey. I am not sure what is going on and it's apparent the medical community is at a loss right now too. Casey went to bed at 8pm on Wednesday and just wouldn't fully wake up on Thursday. I tried bribing him with food, milk, even The Wonderpets but he was just a little blob on the floor. Eyes open, starring off into space he wouldn't answer to his name or anything. As Ming-Ming would say:

After consulting with his pediatrician we decided to take him to the ER. They ran every test imaginable on my little man. CT, xray, ultrasound, EKG, spinal tap, arterial blood draw, lab work, etc...all that came back was some key tones, low blood sugar and elevated levels of acid in his blood. We were admitted for the evening after he had another "episode" and didn't respond when given his IV. He was so out of it. We were released only to come back the next day. The pediatricians then suspected seizures or a metabolic disorder. We are still at a loss and scratching our heads. Along with the weird episodes the test results came back showing the same shadow in his lung that has been there since his last chest xray in October. Yet another mystery. Our local pediatrician team has referred us to Mayo, so we will be headed to Rochester in the next week for extensive testing as well as more testing back home. While this is the "short" version, I just wanted to start keeping people up to date before I fell behind!

Tomorrow is the EEG to test for seizure activity...we have to sleep deprive him tonight, wake him early tomorrow and then proceed to not let him nap until the EEG at 1 pm. Wish us luck, we need it!

Thank you to all my friends for texting and keeping us in your thoughts and prayers, we really appreciate it!

1 comment:

  1. You're such a strong momma! I'm still sending prayers your way.