Following our son, Casey, on his brave journey navigating saggital craniosynostosis, childhood apraxia of speech and everything that comes along with it.
Sunday, July 3, 2011
"You wouldn't be shattered on the floor now
If only you had seen what you know now then"
It got me thinking, before Casey's diagnosis we had never heard of Cranio...we didn't know we should be concerned about his head shape...to us it made sense, long skinny baby = long skinny head. It didn't stick out to us. The doctors didn't seem concerned, no one mentioned anything at the baby-well appointments until now. Looking back it's been so obvious. It's even more common in premature babies...why didn't someone check? Why didn't we know? Why didn't it trigger an alarm somewhere? It doesn't have to be this way for other families and other babies...early detection is the key.
Please visit my "Resources" blog and look up what you can, educate yourselves and others. Maybe just keeping it in the back of your mind will help someone, someday.